The role of patients, caregivers, and communities in Learning Health Systems: a narrative review

Review2025Getting started
Written By Shelley Vanderhout

This review examines how patients, caregivers, and communities engage in Canadian learning health systems. Analyzing 36 articles, it identifies 192 engagement activities and synthesizes ten contributor roles across three functions: System Shapers, Community and Capacity Builders, and Implementers. Findings offer a starting point for designing meaningful contributor roles and highlight opportunities to reimagine engagement practices by embedding contributors within systems and engaging communities beyond patient care settings

Keywords: Getting Started, Patient Partnership and Engagement, Reviews, 2025

https://doi.org/10.3389/frhs.2025.1606124

Shelley Vanderhout
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Patient Roles and Patient Knowledge in Learning Health Systems